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Conspiración de silencio: ¿ayuda o agonía? = Conspiracy of silence: aid or agony?

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Resumen: La conspiración de silencio o pacto de silencio, definida como “el acuerdo implícito o explícito por parte de familiares, amigos y/o profesionales, de alterar la información que se da al paciente con el objetivo de ocultarle el diagnóstico y/o pronóstico y/o gravedad de la situación”, se presenta como posibilidad para aquellas personas que viven un momento de inminente muerte entre uno de sus seres queridos. El paciente enfermo puede ser consciente y aceptar la ocultación con sus plenas facultades, conspiración adaptativa, o ir en contra de su voluntad, conspiración desadaptativa. Es este último caso el que suscita gran conmoción y diversidad de opiniones en cuanto a la moralidad y la legitimidad de llevar a cabo la conspiración. El texto pretende poner de manifiesto la realidad que se esconde detrás de la conspiración de silencio desadaptativa, con el objetivo de explicar las nefastas consecuencias que este pacto pro­voca en los tres estadios del triángulo afectado: paciente, familiares y/o amigos, y equipo médico. Con efectos como la ansiedad, el temor, la incertidumbre, la desconfianza y el aislamiento, la conspiración de silencio tiende a suponer más una agonía que una ayuda a la hora de enfrentar una situación de enfermedad terminal.Palabras clave: conspiración de silencio; muerte; paciente; enfermedad; familiares; equipo médico; terminal; agonía.Abstract: The conspiracy of silence or pact of silence, defined as “the implicit or explicit agreement by part of relatives, friends and/or medical team, of altering the information given to the patient in order to hide the diagnosis and/or prognosis and/or seriousness of the situation “, is presented as a possibility for those people who live a moment of imminent death among one of their beloved ones. The ill patient can be conscious and accept concealment with his/her full powers, adaptive conspiracy, or, on the contrary, the conspiracy of silence can go against his/her will, maladaptive conspiracy. This last case is the one which arouses great commotion and diversity of opinions regarding morality and legitimacy of carrying out maladaptive conspiracy. The text aims to reveal the reality behind the conspiracy of silence, with the target of explaining the drawbacks that this pact causes in the three stages of the affected triangle: patient, family members and/or friends, and medical team. With effects such as anxiety, fear, uncertainty, mistrust and isolation, the conspiracy of silence tends to suppose more an agony than an aid when facing a situation of terminal illness.Keywords: conspiracy of silence; death; patient; disease; relatives; medical team; terminal; agony.
Title: Conspiración de silencio: ¿ayuda o agonía? = Conspiracy of silence: aid or agony?
Description:
Resumen: La conspiración de silencio o pacto de silencio, definida como “el acuerdo implícito o explícito por parte de familiares, amigos y/o profesionales, de alterar la información que se da al paciente con el objetivo de ocultarle el diagnóstico y/o pronóstico y/o gravedad de la situación”, se presenta como posibilidad para aquellas personas que viven un momento de inminente muerte entre uno de sus seres queridos.
El paciente enfermo puede ser consciente y aceptar la ocultación con sus plenas facultades, conspiración adaptativa, o ir en contra de su voluntad, conspiración desadaptativa.
Es este último caso el que suscita gran conmoción y diversidad de opiniones en cuanto a la moralidad y la legitimidad de llevar a cabo la conspiración.
El texto pretende poner de manifiesto la realidad que se esconde detrás de la conspiración de silencio desadaptativa, con el objetivo de explicar las nefastas consecuencias que este pacto pro­voca en los tres estadios del triángulo afectado: paciente, familiares y/o amigos, y equipo médico.
Con efectos como la ansiedad, el temor, la incertidumbre, la desconfianza y el aislamiento, la conspiración de silencio tiende a suponer más una agonía que una ayuda a la hora de enfrentar una situación de enfermedad terminal.
Palabras clave: conspiración de silencio; muerte; paciente; enfermedad; familiares; equipo médico; terminal; agonía.
Abstract: The conspiracy of silence or pact of silence, defined as “the implicit or explicit agreement by part of relatives, friends and/or medical team, of altering the information given to the patient in order to hide the diagnosis and/or prognosis and/or seriousness of the situation “, is presented as a possibility for those people who live a moment of imminent death among one of their beloved ones.
The ill patient can be conscious and accept concealment with his/her full powers, adaptive conspiracy, or, on the contrary, the conspiracy of silence can go against his/her will, maladaptive conspiracy.
This last case is the one which arouses great commotion and diversity of opinions regarding morality and legitimacy of carrying out maladaptive conspiracy.
The text aims to reveal the reality behind the conspiracy of silence, with the target of explaining the drawbacks that this pact causes in the three stages of the affected triangle: patient, family members and/or friends, and medical team.
With effects such as anxiety, fear, uncertainty, mistrust and isolation, the conspiracy of silence tends to suppose more an agony than an aid when facing a situation of terminal illness.
Keywords: conspiracy of silence; death; patient; disease; relatives; medical team; terminal; agony.

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