Search engine for discovering works of Art, research articles, and books related to Art and Culture
Javascript must be enabled to continue!
HEMOPHILIA: A Study in Hope and Reality, by Alfred H. Katz, D.S.W. Springfield, Illinois: Charles C Thomas, 1970, 159 pp., $9.00
View through CrossRef
This book is mainly about the social and psychological problems of hemophilia as determined primarily by the results of questionnaires returned by more than a thousand patients with hemophilia aged 16 years or over. In the author's words, "In hemophilia are encapsulated most of the problems of adaptation to chronic illness and social limitation found in other disabling conditions." Thus the conclusions of this study should have applicability beyond the confines of hemophilia. The book repeatedly deplores the widespread misinformation about the nature of hemophilia and the general low expectations of potential achievements of persons afflicted with this disease.
Title: HEMOPHILIA: A Study in Hope and Reality, by Alfred H. Katz, D.S.W. Springfield, Illinois: Charles C Thomas, 1970, 159 pp., $9.00
Description:
This book is mainly about the social and psychological problems of hemophilia as determined primarily by the results of questionnaires returned by more than a thousand patients with hemophilia aged 16 years or over.
In the author's words, "In hemophilia are encapsulated most of the problems of adaptation to chronic illness and social limitation found in other disabling conditions.
" Thus the conclusions of this study should have applicability beyond the confines of hemophilia.
The book repeatedly deplores the widespread misinformation about the nature of hemophilia and the general low expectations of potential achievements of persons afflicted with this disease.
Related Results
Hemophilia
Hemophilia
Hemophilia is a family of rare bleeding disorders characterized by deficiency of clotting factors. Hemophilia A is an inherited deficiency of factor VIII, whereas hemophilia B (Chris...
Antithrombotic Therapy in People with Hemophilia—A Narrative Review
Antithrombotic Therapy in People with Hemophilia—A Narrative Review
As the life expectancy of individuals with hemophilia continues to increase, the complexity of balancing bleeding risks and thrombotic management has become increasingly critical i...
A Systematic Review of the Oral Health Status of Hemophilic Patients
A Systematic Review of the Oral Health Status of Hemophilic Patients
Background: Hemophilia is an inherited bleeding disorder, with the most well-known forms being hemophilia A and hemophilia B. It is important for patients with hemophilia to mainta...
Health-Related Quality of Life Assessment in Iranian Hemophilia Patients (Single Center); A Cross-Sectional Study
Health-Related Quality of Life Assessment in Iranian Hemophilia Patients (Single Center); A Cross-Sectional Study
Abstract
Background: Hemophilia affects the patients′ life in many aspects. The major concerns are restriction on physical activities, life-threatening bleeding, arthropath...
CRISPR/Cas9-mediated knockin of human factor IX into swine factor IX locus effectively alleviates bleeding in hemophilia B pigs
CRISPR/Cas9-mediated knockin of human factor IX into swine factor IX locus effectively alleviates bleeding in hemophilia B pigs
Hemophilia B is an X-linked recessive bleeding disorder caused by abnormalities in the coagulation factor IX gene. Without prophylactic treatment, patients experience frequent spon...
HIV Comorbid Infection and Liver-Directed AAV-Based Gene Therapy in Adults with Severe and Moderately Severe Hemophilia B: Efficacy and Safety Results from Phase 2b and the Pivotal Phase 3 HOPE-B Trials 3 Years after Administration of a Single Dose of Etr
HIV Comorbid Infection and Liver-Directed AAV-Based Gene Therapy in Adults with Severe and Moderately Severe Hemophilia B: Efficacy and Safety Results from Phase 2b and the Pivotal Phase 3 HOPE-B Trials 3 Years after Administration of a Single Dose of Etr
Introduction: People living with HIV represent an important subset within the hemophilia community. Concerns about increased hepatotoxicity of liver-directed adeno-associated viral...
Frequency of Inhibitors among known Hemophilia A Patients.
Frequency of Inhibitors among known Hemophilia A Patients.
ABSTRACT
Introduction: Inhibitors are IgG alloantibodies which are directed against exogenous clotting factor VIII that neutralize the function of infused clotting factor con...
Haemophilia Care in Martinique: From 1982 to 2015
Haemophilia Care in Martinique: From 1982 to 2015
Abstract
Introduction: Hemophilia A (HA) and B (HB) are the most common congenital bleeding disorders, characterised by missing clotting factor VIII (FVIII) for HA o...