Disability, Quality of Life and Hearing Function in Patients With Untreated Otosclerosis

ABSTRACTObjectivesThe aim of this study was to assess the presentation of otosclerosis in subjects with newly developed hearing loss.MethodsThis study was part of a prospective study that included subjects with newly diagnosed otosclerosis with the intention to undergo treatment. For comparison, statistical data from the Public Health Agency of Sweden and Statistics Sweden (SCB) were used. The subjects answered questionnaires covering demographic data, the Short Form SF 36 (SF‐36), the Glasgow Hearing Aid Benefit Profile (GHABP) and the Hospital Anxiety and Depression Scale (HADS). Pure tone and speech audiometry were performed.ResultsOne hundred and fifty‐eight subjects were included, of whom 62% were women. The mean age was 45.8 years, and women were significantly younger than men were (p value 0.001). Tinnitus was reported by 72%, which was significantly greater than that reported by the general population. The study population had a high level of health‐related quality of life. Hearing disability was most often displayed in more challenging listening situations, such as engaging in conversations with several people. The mean hearing level was of moderate severity (mean PTA4 AC 48 dB HL), with unilateral hearing loss in most cases (bilateral hearing loss; female 32% and male 25%).ConclusionsThe otosclerosis cohort had a high level of quality of life despite experiencing hearing disability, especially in challenging listening situations, and a high level of tinnitus when seeking help.Level of Evidence3