Navigating the aftermath of spontaneous coronary artery dissection: a qualitative exploration of women's experiences

Abstract Background Women who have survived spontaneous coronary artery dissection (SCAD) struggle to resume their lives as before SCAD and lack knowledge on how to recover. Thus, this study aimed to explore the rehabilitation needs and challenges in resuming everyday life among women with SCAD. Methods and results A qualitative approach using a phenomenological-hermeneutical methodology. We conducted six virtual focus groups involving 26 women with SCAD, recruited from a patient group. The focus groups were video-recorded, transcribed, and analysed using Ricoeur's theory of interpretation. The findings led to three themes: Distrust of the normally well-functioning body, ii) Being the expert on your condition, and iii) Rehabilitation following SCAD: A matter of both the heart and the mind. The women strive to regain trust in their bodies and minds and reinforce the distinction between the body and mind before and after SCAD. The women felt a responsibility to educate themselves about SCAD, as professionals' lack of knowledge or misconceptions left them managing their condition independently. The one-sided focus on physical rehabilitation neglected the psychological impact, leaving women without strategies for managing the new everyday life with SCAD. Conclusion The study highlights the complex physical and psychological rehabilitation needs and challenges faced by women following SCAD due to profound alterations in their lives, distrust in their bodies and the burden of becoming experts on their condition. Tailored rehabilitation programs that address these needs in addition to improving healthcare professionals' knowledge about SCAD are essential for enhancing recovery and quality of life.The structural analysis  Graphical abstract