Henoch-Schonlein Purpura in Children at Department of Pediatric, Bach Mai Hospital

Objectives: To identify the percentage of parents having the correct knowledge of caring their children and evaluable quality of life in children with chronic kidney diseases. Subject and method: descriptive cross sectional study and  evaluated the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales of 115 children with chronic kidney diseases (CKD) and their parents who treated at Department of Pediatric of Bach Mai hospital. Results: the parents’ correct knowledge about CKD was persistant and relapse (90,4% and 89,4%). The sourse of information parents’s from medical staffs was 48,2% and 23% from social networking. Over 50% of parents thought that knowledge getting from medical staffs was necessary. Beside that 33% of parents thought that information gettinh from social networking was harmful. Total quality of life score of children with CKD was 21,9 ± 14,9  point. Physical and learning field were more effective. However, total quality of life score of children with CKD whose parents got consulting of medical staffs was lower than wothout medical staffs’s consulting. The difference between total quality of life score of children with CKD and job of parents was not is not statistically significant. Conclusion: the supply more information will help parents understand their role in co-operation with medical staffs to help the children integrate into the normal society and enhance their quality of life. Keywords Knowledge,chronic kidney diseases. References [1] EULAR/PRINTO/PRES, Citeria for Henoch– Schönlein purpura, childhood polyarteritis nodosa, childhood Wegener granulomatosis and childhood Takayasu arteritis: Ankara 2008, Part II: Final classification criteria, AnnRheum Dis 69 (2010) 798–806.[2] Seza Ozen, Stephen D. Marks, Paul Brogan et al, European consensus-based recommendations for diagnosis and treatment of immunoglobulin A vasculitis-the SHARE initiative, Rheumatology, 58(9) (2019) 1607–1616.[3] L.J. Liu,J. Yu and Y.N. Li, Clinical characteristics of Henoch-Schonlein purpura in children, Zhongguo dang dai er ke za zhi. Chinese journal of contemporary pediatrics 17(10) (2015) 1079-1083.[4] Le Thi Minh Huong, Thuc Thanh Huyen, study about characteristics of clinical and paraclinical manifestations of HSP in children in National Pedicatrics of hospital, Journal of Practical Medicine 874(6) (2013) 91-94 (in Vietnamese).[5] Y.H. Lee, Y.B. Kim, J.W. Koo et al, Henoch-Schonlein Purpura in children hospitalized at a tertiary hospital during 2004-2015 in Korea: epidemiology and clinical management,Pediatric gastroenterology, hepatology & nutrition 19(3) (2016) 175-185.[6] I.M. Buscatti, B.B. Casella, N.E. Aikawa et al, Henoch-Schönlein purpura nephritis: initial risk factors and outcomes in a Latin American tertiary center. Clin Rheumatol 37(5) (2018) 1319-1324.[7] J.D. Delbet, J. Hogan, B. Aoun et al, Clinical outcomes in children with Henoch-Schönlein purpura nephritis without crescents. Pediatr Nephrol 32(7) (2017) 1193-1199.