Breast Cancer Survivorship in Ghana: Peace and Love Survivors´ Association (PALSA)

Background and context: About 10 years ago in Ghana, you couldn´t find a woman to say I had breast cancer, went through the treatment and I am still alive and a survivor now. Today Breast Care International (BCI) has breast cancer (bc) survivors who not only share their stories but show their postmastectomy scars. Aim: To create a community of bc survivors reintegrating into society emotionally, physically, psychologically healed/content and by so doing demystify bc in Ghana. PALSA has over 800 survivors. Strategy/Tactics: 2 years after completion of active treatment, our patients are absorbed into PALSA where they continue to receive counseling and postcancer reviews. Some PALSA members were trained in 2013 by Carries´ Touch from California, USA on how to share their stories, counsel and navigate newly diagnosed bc patients. Program/Policy process: Survivorship is complex. Our survivors need to be filled and content to genuinely impact their audience when they share their stories and navigate bc patients. a) Survivors in our HOPE (Helping Others through Personal Experience) program counsel and walk the treatment journey with newly diagnosed patients. b) Showcasing survivorship with > 300 survivors parade during BCI Ghana walks for the cure. c) Survivors join all BCI outreach programs to share their stories, with postmastectomy survivors boldly showing their external prosthesis and framed photos of their scars. d) 2017 Dress Campaign - 5 bc survivors with pink tailor made clothes shared their stories through art. This year 20 survivors will participate thanks to donation in kind from GTP. e) September 30th 2017, survivors´ children and their mothers danced at the African Regent Hotel and the arrival hall of Kotoka International Airport to usher in the pink month. f) For the first time Kotoka International Airport was decorated in pink for the month of October to celebrate breast cancer awareness. Outcomes: Before the HOPE project PLH had 70% defaulting treatment especially mastectomy, compared with 10% default rate now. More women are ready and eager to be screened because they see and hear women survive bc and mastectomy for years. Flash mobs and the dress campaign are new and fun ways to take breast cancer awareness to the youth. What was learned: Building a strong survivorship program is an important part of life after bc. Not only do we maximize impact in advocacy and awareness creation with survivors, our survivors care/support each other and find a place to heal and integrate in society (either reintegrating or find something new like being used at PLH in HOPE, decorating airports for the pink month). Our survivors are ready and eager to share their stories and help change bc in Ghana in their own unique ways. We just need to create all the different ways they can do this and save as many lives as possible.